Congresses, Meetings, Conferences, Courses - Programs, Abstracts, Announcements

01-03

04-10

11-17

18-24

Susan Kuranoff 
Phone: +41 61 322 2135 (evenings)

► Select Other Events by Location / Germany

► Select by Topic / Retina and Vitreous

International Refsum Disease Workshop - Berlin 2005

This workshop aims to:

• provide opportunity for exchange of ideas, experience and dissemination of information among Refsum Disease patients and their families worldwide 
• present results of recent research and efficacy of medical care, with practical relevance for Refsum Disease patients and families 
• explore options for Refsum Disease patient participation in on-going EU-funded research projects 
• encourage concerted actions for generation and availability of improved data on treatment and prevention in Refsum Disease
  
  Workshop format: 

• Plenary session 
• Concurrent workshops for patients and clinicians/researchers 
• Closing plenary session
  
  Preliminary workshop topics (subject to change):  

• RRD project in Germany and evidence in treatment and prevention of rare retinal diseases 
• Refsum Disease - Ophthalmologic manifestations 
• Refsum Disease - Cardiac manifestations 
• Refsum Disease - Neurological manifestations 
• Refsum Disease – Psychological aspects 
• Common practices of apheresis as treatment for Refsum Disease 
• Dietary treatment in Refsum Disease 
• Comparison of medical, psycho-social and rehabilitation services 
• Overview of ongoing EU-funded RD projects (RDDPT project, etc.), rational, goals & patient participation

Full information: http://www.retina-international.org/events.php

I thank Retina International for cooperation.